SOCIETY FOR INHERITED METABOLIC DISORDERS
Terms and Conditions of Use of
SUMMARY OF IMPORTANT LEGAL INFORMATION
The SIMD.org website (the "Site") is produced by the Society for Inherited Metabolic Disorders (the "SIMD"). All use of the Site is subject to the Terms and Conditions set forth below. By entering and using the Site, you acknowledge that you have read and understood such Terms and Conditions and that you agree to abide by them.
The Site is designed for educational purposes only. SIMD does not endorse, guarantee, warrant, or recommend any products or services discussed or advertised on the Site or linked from the Site.Copyright and Trademark Notices. The content of material provided by SIMD on the Site is copyrighted by SIMD or used by SIMD under license. SIMD and its licensors retain all copyrights and other proprietary rights in or relating to any content, including any software, provided on the Site. All rights are reserved and such content may not be reproduced, downloaded, modified, published, displayed, disseminated, or transferred, in any form or by any means, except with the prior written agreement of SIMD or as indicated below. You may download and print a small number of copies of the content for scientific or educational uses. You may not sell, transfer, reproduce, transmit, distribute, perform or display such content for any commercial purpose without the prior express written consent of SIMD.
Information Presented by SIMD. The information presented on behalf of SIMD on the Site is designed for informational and educational purposes only. Although SIMD endeavors to ensure the accuracy and reliability of information presented by or on behalf of SIMD on the website, it does not guarantee the accuracy, completeness, efficacy or timeliness of such information, and therefore, makes no representation or warranty regarding the same. Furthermore, SIMD does not endorse, guarantee, warrant, or recommend any products or services discussed or advertised on the Site or linked from the Site. Reliance on any information appearing on the Site that is provided by SIMD or SIMD representatives is solely at your own risk.
Information Presented by Users and Third Parties. Any content and/or opinions uploaded or submitted by a third party, including all materials, articles, hyperlinks, documents, spreadsheets, presentations, images, individual user profiles, comments, opinions, or other dialogue, or any other content or opinions in any form (hereinafter “User-Posted Content”) and responses to questions are solely the opinions and responsibility of the person or entity submitting them and do not necessarily reflect the opinions of SIMD. SIMD makes no representation or warranty regarding User-Posted Content that is posted or uploaded by users of the Site or other third parties, and SIMD expressly disclaims any and all liability related thereto. By using the Site, you agree to hold SIMD harmless from any and all claims arising out of User-Posted Content. Reliance on any information appearing on the Site, whether provided by third parties at the invitation of SIMD or visitors or contributors to the website is solely at your own risk
The Society collects personal information only by lawful and fair means. When appropriate, we collect personal information directly from the data subject or with the knowledge or consent of the data subject.
Members and Applicants for Membership: We collect personal information from members through a membership application that solicits standard contact information and a curriculum vitae. Applicants provide the names of two current SIMD members who support the application and who may provide additional information in support of their recommendation. Therefore, information about members comes from their applications and from other information provided directly by other members.
We may seek updated address information for members from their institutions, from professional colleagues, through the Postal Service’s National Change of Address service, or from public sources.
Website Visitors: We do not actively collect any personal information about website visitors unless a visitor provides information by filling out a form or sending an email message. The website may maintain a standard Internet web log that includes IP addresses and other information about visitors. We do not routinely review or use the information in a web log. However, if we suspect hacking, harassment, or illegal activity on the website, we may review the web logs and share them with law enforcement agencies or others to identify responsible individuals.
Use, Purpose, and Disclosure
We process personal information to accomplish the goals of the Society. We do not solicit information online from children under the age of 13. We do not anticipate use of our online services by children.
Members and Applicants for Membership: We may use and disclose information about applicants for membership to make a decision on the application. We may disclose applicant information to others we ask to assist us in making a decision.
We use and disclose contact information about members to provide services to members through appropriate means, including postal and electronic mail. We may hire third parties to help us provide services.
We disclose a public list of members, including name, institution, city, and state. A member may choose (opt-in) to include his or her address and telephone number in the public listing.
Contact information for all members (address, city, state, zip, phone, fax, and email) is posted on the website where it is accessible to other members. A member may opt-out of the sharing of contact information with other members by checking the specified box in the member information form However, a member may not opt-opt of the sharing of his or her name, institution, city, and state.
Contact information about members may be rented or otherwise shared with others, including commercial organizations and non-profit organizations, when the disclosure is approved by the Board of Directors. Members may opt-out of the sharing by sending an email message to the SIMD Administrator at /Contact.htm. Unless a member has opted-out of sharing, the member’s contact information may be shared.
The website provides a message board for the use of members. Any information posted on the message board is accessible to other members.
Information about former members may be maintained by the Society for an indefinite period.
Conference Attendees: We use information about conference attendees for conference purposes. We may disclose the information to contractors hired to run the conference, to credit card processors and companies for credit card payments, to hotels and other providers of conference facilities, and to co-sponsoring professional organizations.
We may rent or otherwise share lists of conference attendees, including contact information, with commercial organizations that may use the information to send postal or electronic mail to attendees. We may share lists of conference attendees with other professional societies. Attendees may opt-out of the sharing of lists with commercial organizations by checking the appropriate box on the registration form.
We may prepare and circulate lists of attendees, including contact information, to others who attend the conference. We post a list (names, affiliations, and email addresses) of conference attendees on our website for a period following a conference. Attendees may opt-out of the inclusion of their contact information (but not their names) on attendance lists by checking the appropriate box on the registration form.
Information on conference presenters, including posters, is posted on the website and in the Society's journal. The disclosure includes the normal identification and affiliation information for a scientific publication.
For conferences held in other countries with local co-sponsors, the use of information about conference attendees is managed by the co-sponsor in accordance with privacy laws of the jurisdiction where the conference is held.
Website Visitors: We use or disclose information about a website visitor to respond to requests from the visitor. We do not normally make any other use or disclosure of the information, except for security purposes.
In addition to the uses and disclosures already discussed -
We may disclose personal
information in response to a subpoena or court order, or if we are served
with a search warrant.
If appropriate, feasible, and lawful, we may
make reasonable attempts (via telephone or email) to tell a member about any
of these disclosures, either before or after they occur.However, we cannot guarantee that we will
always be able to provide any notice of these demands or disclosures.
We may voluntarily disclose
personal information about website visitors and activities to law
enforcement, to the website hosting company, or to security providers or
other investigators in connection with the operation of our website.
We may voluntarily disclose any personal information to law enforcement agencies if we have reason to believe that a law has been or may be violated.
We may disclose personal information to the extent we deem it necessary:
(i) to protect the security or integrity of its website or online service;
(ii) to take precautions against liability;
(iii) in the event of a security breach, to take action to prevent, minimize, or remedy any harm from the breach;
(iv) to respond to judicial process; or
(v) to the extent permitted under other provisions of law, to provide information to law enforcement agencies or for an investigation on a matter related to public safety.
We may disclose personal information to those we employ or seek to employ as lawyers, accountants, insurers, financial institutions, credit card service providers, computer service providers, and others who provide services to us.
When we disclose personal information to third parties, the information that we disclose may remain in the possession of the third party and will become subject to the third party's information practices.
Those practices may differ from the policies that we follow. The Society is not responsible for the privacy policies or practices of any third party.
We maintain personal information online and offline using security methods normally employed by non-profit scientific organizations. We rely on our web hosting company to maintain the security of our website. We accept credit cards through an independent website that has its own privacy and security policies. We do not maintain credit card information in any online database.
Access, Correction, and Data Quality
We try to maintain accurate records about members and others, and we need the assistance of data subjects to maintain complete and current records. Anyone who wants a copy of his or her information that the Society maintains can make a request to the SIMD Administrator. Anyone who finds the information to be inaccurate or incomplete may submit a request for correction to the SIMD Administrator. Contact information for the SIMD Administrator is at /Contact.htm.
Complaints and Questions
Address questions or complaints about this policy to the SIMD Administrator. Contact information for the SIMD Administrator is at /Contact.htm.
Version 1.1 01/28/2008 First Public Version